KD RESEARCH

Please help with KD research: Instructions For Participation In A Research Project At UCSD
INSTRUCTIONS FOR PARTICIPATION IN A RESEARCH PROJECT AT UCSD
Genetic polymorphisms in Kawasaki Disease
Principal Investigator: Jane C. Burns, M.D.
Instructions to parents for blood drawing:
In order to participate in our DNA study, we will need a DNA sample from your child. For children less than 6 yrs., this must be provided by a blood sample. In older children, we can use a mouthwash rinse sample as we do for the parents. Please follow these instructions:....
1) If your child is under 6 yrs. of age, please arrange blood drawing through your local physician. We have no funding to defray the cost of the blood drawing or the shipping costs. ....
2) Please include with the blood sample your name, name of your child, home address, telephone number, and e-mail so that we may contact you if there is a problem.....
3) Please request a copy of the hospital discharge summary (or other summary describing the features of your child's acute illness) and any echocardiogram report from your physician. Include these documents with the signed consent form. This information will be kept confidential, but we must have it in order to confirm that your child did, indeed, have ....Kawasaki.... disease.....
4) Return the signed parent consent form when you send us the blood sample.....
Instructions to laboratory/phlebotomist:....
a) Please draw 3 cc from the research subject into a lavender top tube (EDTA)....
b) Ship by Fed Ex or regular air mail. During the summer months, ship with blue ice packs to keep samples cool, but not frozen. Tubes must be wrapped so that they will not be in contact with the blue ice packs. Do not ship on wet ice! During winter months, wrap tubes in paper towels or bubble wrap to prevent freezing.....
c) Do not ship samples on a Friday. We cannot accept weekend delivery. Blood samples may be held refrigerated (4°C) for several days before shipping.....
d) Fed Ex address:....
Jane C. Burns, M.D.....
....UCSD.. ..School.... of Medicine....
....Basic.. ..Science.. ..Building.... , 2nd fl., Rm 2023....
....La Jolla.., ..CA.. ..92093.......
Tel. 858-246-0157....
e) If possible, please send e-mail to our Lab Manager, DeeAnna Scherrer (dscherrer@ucsd.edu) with Fed Ex tracking # so that we can track the shipment if it doesn't arrive.....
Thank you for your participation in this research project. Please check our website for updates on research progress. Kawasaki Website:....
http://www.pediatrics.ucsd.edu/kawasaki....