Vasculitis Awareness Week May 3-9, 2009, pls. contact the VF to learn how you can participate!
This is an e-mail Shannon from The Vasculitis Foundation send me, they have a database for children who have had Kawasaki disease, if you would like to have your child added to the database please contact her, send your childs full name and date of birth. They are also having awareness week on May and are asking to please pass out KD cards to aware people of it, if you would like to help out please contact her. ~Vanessa Hello Vanessa,Thank you so much for your email and I have placed Isabella's information in the database. Your url site looks great and we will send you 25 KD disease cards to pass out. They will be better quality if we mail them. Judy Blankenship at jblankenship@vasculitisfoundation.org will mail them. I will let her know.Also, I have forwarded your information to our Executive Director @jakullman@vasculitisfoundation.orgThe packet you will receive is free and I showed you how to download the patient packet. (see below)You will receive (in the packet) a sample newsletter and if you join for $25.00 you will receive the newsletter for one year. The newsletter is very informative and it has patient stories, area contacts and Chapter meeting information, research being performed and the most updated information available in written articles by the medical community.We are so grateful that we heard from you and thank you, again, for ALL you are doing and thanks for making all of the patients with whom you have contact, aware of Awareness Week.Take good care and I have marked you as an Advocate in the database.Sincerely,Shannon
Shannon MorganNew Patient Support and New Chapter CoordinatorVasculitis Foundation Phone: 561-732-6744 (FL)Toll Free: 800-277-9474http://www.msplinks.com/MDFodHRwOi8vd3d3LnZhc2N1bGl0aXNmb3VuZGF0aW9uLm9yZy8=Celebrate Vasculitis Awareness Week May 3-9, 2009. Please contact the VF office to learn how you can participate
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